France - Madagascar: Sickle Cell Network OpenMRS
The integration of ICT in activities on land is a new initiative by the Association LCDMF for improving the quality of decision responsible for sickle cell patients in Madagascar and neighboring islands.
This project is to create a network of multilateral cooperation in the fight against Sickle Cell Disease in the Indian Ocean Region and is now a reality thanks to the online system OpenMRS Sickle Cell and the establishment of an interactive website. OpenMRS is a scientific contribution GNU / GPL for the management of patient records secure, it is based on an innovative concept as having interests:
* For Doctors treating - To better organize the process of care. (Easy access to the file, follow best, etc.) - To be able to join a caring community and international expertise in the management of sickle cell patients. - The data is secure. (Reduced risk of loss or data leakage) * For Researchers
- The completeness of the data helps to promote cross-sectional studies and / or longitudinal to advance clinical research, including updates of management protocols care and patient monitoring.
- A Research Network from the data warehouse is practically feasible. * For Patients - To be able to receive quality care tailored to international standards. - His record remains accessible wherever it goes and its management may be provided by an international community of experts and specialists in case of complications or problems difficult to solve.
- It is informed at any point in the evolution of his illness and he has the opportunity to ask direct questions to specialists within the network. This communication is secure.
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