Jenny spent an hour with associations of Fontenay-sous-Bois on the occasion of the feast of music and to provide support to the creation of an association to fight against sickle cell disease.
A heavy and painful subject for a holiday. A disease that is scary. Nobody wants their child suffers. But the disease is there. This is the first genetic disease in the world and the least known: we must talk about reducing the pain and silence.
No, this incurable genetic disease is not just Africans. No, this incurable genetic disease affects not only the Melanoderms No, incurable genetic disease that affects not only the "Caribbean". No, patients do not disturb social order: they have only received their parents' genes are the cause of the disease.
Yes, you can live with sickle cell disease, thalassemia, microcytosis and other forms of the disease. A condition of entering a treatment protocol and observe a strict lifestyle. Provided also benefit from the benevolence of their social and cultural development.
Portrait of Jenny Hippocrates-FixyJenny Hippocrates-Fixy is chairperson of the Association "Together against sickle cell disease.
Given its presence on all fronts in the fight against sickle cell disease, unwavering commitment, you might think it's very easy to find a portrait of the lady on the net. Well, no! Here is the result of two hours of research. The words she used on the site of the Maison du Citoyen and the Voluntary Sector are repeated in every interview and in his books, with conviction. 
"[...] we fight for that funding be allocated to research and patient care. They are currently very weak. 
How you go about you?
By creating Event and working at the union associations.
[...]
Interviews: "Patient Organizations: Unity is strength."
Hippocrates-Fixy Jenny
, March 2008, by serge cane.
2 Interviews Jenny HIPPOCRATES 1
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Jenny HIPPOCRATES 2
Fighting disease in the bodies and minds
Sickle Anaemia CELL IN THE WORLD
Amicale sickle Sickle Anaemia CELL IN THE WORLD
Amicale the fight against sickle cell disease in Cameroon
Address: BP 13029 Yaounde Country: Cameroon (Rep. of) Tel: 237 983 September 1972 Mail: Cameroon has sickle cell-online dot com
NATIONAL ASSOCIATION OF Sickle cell
BP: 7432 Douala -
CAMEROON - cel. / Tel. (237) 952 72 96 / 347 34 73
President: D. Billong Emmanuel (National Coordinator)
Vice-President: beName Berlin andrepanocam at yahoo dot fr
Plants provide comfort but remain powerless cons sickle cell
Jenny Hippocrates - FIXY, President of the
PIPEDA. :
"How can you lie to millions of patients with sickle cell disease and seeking healing? I say to all those who believe in this molecule boasted that nothing has been proved in so far as the health authorities have not tested and they have not given their approval to do a test scale . Myself and the association that I disclaim all responsibility and do not endorse in any way what is utopian and "quackery".
"
Unfortunately there is no cure genetic diseases with simple plant extracts. " We are born, we live and we die sickle cell and this is a fact, but today we saw much better through his illness progress of medical care and a strict lifestyle. " Sunday, September 7, 2008 on France 2, Michel Drucker calls Dr. Jerome FAGLA Medegan (inventor of the VK500) . Read Review of SOS Globi
Dr. Jerome Medegan FAGLA speaks of "finding a cure against sickle cell disease.
MEDEGAN FAGLA Dr. Jérome - Vivement dimanche
sent LunaticDog94 . -
News Centre Live Video.
The integration of ICT in activities on land is a new initiative by the Association LCDMF for improving the quality of decision responsible for sickle cell patients in Madagascar and neighboring islands.
This project is to create a network of multilateral cooperation in the fight against Sickle Cell Disease in the Indian Ocean Region and is now a reality thanks to the online system OpenMRS Sickle Cell and the establishment of an interactive website. OpenMRS is a scientific contribution GNU / GPL for the management of patient records secure, it is based on an innovative concept as having interests:
* For Doctors treating - To better organize the process of care. (Easy access to the file, follow best, etc.) - To be able to join a caring community and international expertise in the management of sickle cell patients. - The data is secure. (Reduced risk of loss or data leakage) * For Researchers
- The completeness of the data helps to promote cross-sectional studies and / or longitudinal to advance clinical research, including updates of management protocols care and patient monitoring.
- A Research Network from the data warehouse is practically feasible. * For Patients
- To be able to receive quality care tailored to international standards. - His record remains accessible wherever it goes and its management may be provided by an international community of experts and specialists in case of complications or problems difficult to solve. - It is informed at any point in the evolution of his illness and he has the opportunity to ask direct questions to specialists within the network. This communication is secure.
* For the Local Health System 
This new scientific contribution is the result of pioneering work, which will form the basis for the integration of ICT in local medical practices. A tool to advance medical research and strengthen the FMC.
This new scientific contribution is the result of pioneering work, which will form the basis for the integration of ICT in local medical practices. A tool to advance medical research and strengthen the FMC. 
In conclusion, the Association LCDMF will pursue this action from the moment the system is scientifically validated by the Educational Committee of the Faculty of Medicine of the University of the Mediterranean Aix-Marseille II in the Master of Engineering Expertise and Information Systems of Health (EISIS) at the end of June 2009.
Webgraphie
OpenMRS SCD
Website
Association LCDMF
