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France - Madagascar: Sickle Cell Network OpenMRS


The integration of ICT in activities on land is a new initiative by the Association LCDMF for improving the quality of decision responsible for sickle cell patients in Madagascar and neighboring islands.
This project is to create a network of multilateral cooperation in the fight against Sickle Cell Disease in the Indian Ocean Region and is now a reality thanks to the online system OpenMRS Sickle Cell and the establishment of an interactive website. OpenMRS is a scientific contribution GNU / GPL for the management of patient records secure, it is based on an innovative concept as having interests:
* For Doctors treating - To better organize the process of care. (Easy access to the file, follow best, etc.) - To be able to join a caring community and international expertise in the management of sickle cell patients. - The data is secure. (Reduced risk of loss or data leakage) * For Researchers
- The completeness of the data helps to promote cross-sectional studies and / or longitudinal to advance clinical research, including updates of management protocols care and patient monitoring.
- A Research Network from the data warehouse is practically feasible. * For Patients - To be able to receive quality care tailored to international standards. - His record remains accessible wherever it goes and its management may be provided by an international community of experts and specialists in case of complications or problems difficult to solve.
- It is informed at any point in the evolution of his illness and he has the opportunity to ask direct questions to specialists within the network. This communication is secure.

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June 19 against sickle cell





The current distribution of sickle cell disease is closely linked to demographic changes caused by drafts to the modern era. This link to the story justifies the support of Csgd94120 to create an association to fight against sickle cell disease in Fontenay-sous-Bois.


Pending the completion of this project, we propose to

Fontenaysiens two meetings: At the Hospital
HenriMondor
Creteil, on the occasion of International Day of
June 19 (see program below) At Maison du Citoyen and Community Life, Sunday, June 21 Mrs Jenny Hippocrates will celebrate the music with the 600 associations Fontenay-sous-Bois and Fontenaysiens involved in sickle cell disease, thalassemia and microcytosis.
Maison du Citoyen and the Voluntary

16 rue du Reverend Father Lucien Aubry

3:00 p.m. to 9:00 p.m. multiple genres. Succession of small events on an outdoor stage, dance performances and poetry.





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2. 
   Program Henri Mondor
   
   Day International sickle cell
   

Conference debate

The APHP the heart of the management of sickle cell disease
From 11 hours to 16 hours Hall Hospital associative Stands - SOS GLOBE: Awareness of screening and blood donation presentation of projects of the association - EFS - WOMEN IN BECOME
Animation 12:00 - Musical: The road to success mobilization teams research on sickle cell Exhibition Scientific poster

Room Rothman Nelly - Exhibition Sales table for the benefit of the association of patients
Conference debate Henri Mondor Hospital Center in the heart of reference support Amphitheatre of the Faculty of Medicine Site Mondor
14 h opening
Martine Orio
Madam Director of the Hospital Henri Mondor

14 h 05
Professor Serge ROMANA
Tribute to precursors and gentlemen and Camille Guy Merault BERCHEL
Caribbean Centre for drepanocytosis Guy Merault
14 h 15

Professor Frederic GALACTEROS
Coordinator sickle cell center reference
Organization of national ownership

14 h 30
Professor Bertrand Godeau
Head of Department of Internal Medicine
support adult sickle cell disease

14 h 45
Professor Michel GOOSSENS
Manager Genetics Service
Screening and diagnosis of sickle cell

15 h 00
Professor Yves BEUZARD
INSERM Department Head Emeritus of Biochemistry Hopital Saint-Louis
Pathways Therapeutic Research

15 h 15
Carloss KEUMEUGNI
SOS
A GLOBE 94 association of patients serving patients
15 h 20

Word Room

15 h 45
Conclusion Mr. Patrick Karam
Mr. interministerial delegate to equality of opportunity

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Webgraphie:

Together against sickle cell


Drépaction



4th Congress of the SCD 18 to 19 June 2009


Gadeloupe Attitude

Long Can You Live Chf

Assistant (e) communications intern.

Csgd94120 seeks a communications assistant intern to develop his project "University summer ".


Position Profile

Assistant / Communication Assistant provides office Csgd94120 and actors UnivCsgd94120 a communication strategy to publicize the activities of the Association and optimize resources (Code ROME 32213) .
Definition of employment

Publicize the activities of the association

analyze the communication situation Mobilize existing resources

Develop the communications budget

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Assitant (e) Financial Manager & fund-raiser

Csgd94120 looking for a fund-raiser, administration and finance manager trainee

to develop its financial function .

Position Profile



The fund-raiser, fund administrator or financial, employment is emerging. Career often begins as a volunteer in an association.

Fund-raiser financial manager in an association is a multipurpose activity at the crossroads of three businesses:

Fundraising


The administrative and financial ( ROME code 32113: Administrative and Financial)


Value for money

2. Definition of employment
3. Fundraising with the aim to finance the activities of Association and reward stakeholders

Ability to mobilize resources.


Publicize the activities of the association.

• Synchronize calendar de l’association et les événements de communication avec les donateurs.
  
• Contribuer aux revues, websites et newsletters internes, enquêtes dans le but de communiquer sur les besoins financiers de l’Association.
• Gestion gestion administrative et financière
• Collecte, coordination et vérification des données comptables
• Tenue courante des comptes en comptabilité des associations

Gestion financial, fiscal and social cash, calculations & tax returns, management salaries, legal fees and insurance (SACEM ...)

• Analysis of accounting statements
• Presented in standardized form of legal records and all specific information requested by the Board, Board and funders (reports)
• Resource Optimization
• Propose office Csgd94120 and actors UnivCsgd94120 a campaign strategy: defining the target definition and planning contacts.
• Implement the technical, communication and exploration to build the database "Members & Partners" and hitting the targets: members and active members, volunteers, partners, public and private companies .

Coordinate, in conjunction with the office and the president, the drafting of documents for internal and external

• Conduct communications materials for the clearance and management of funds
• Training and experience
• Qualifications required
skills in accounting, management and marketing requirements: the professional certificate option accounting to graduate degrees in accounting or accountancy sector, complemented by training courses qualifying, professional experiences.
Intern higher education highly motivated by the fund-raising.

Professional accounting, financial management of higher level courses in fund-raising.

• Specific skills
• listening skills, good interpersonal, teamwork, sense of selling
• Motivation to work in the associative Domien, afridescendant, 3A

Excellent interpersonal, maturity and ease in social relations, tact

1. Fluency in English and possibly English
2. Excellent drafting abilities
3. Management: Less 5 people
4. Work Environment The trainee works for an association.
94120 The Historical Society is a professional space. The training is the responsibility of the President of the Association, Box by sponsoring professional. The team is responsible, as in any partnership association, to the office and CA
5. The Association has no premises. She works above ground. Skills in e-work, collaborative work, mastery of office tools, Internet and electronic writing tools are indispensable. specifics Association
1. Association Law 1901
6. Read articles => Read the declaration form in the Official Journal =>

More about Csgd94120 =>

Head Office: Maison du Citoyen and the Voluntary
=>



2. Company Size: 0 employees
3. Industry: Company History, Cultural Association nonprofit 4. Location: Fontenay-sous-Bois, 94120

Gratuity financial

• Csgd94120 Within the regime of fees and gratuities is that Volunteers Association, unless otherwise stipulated by the statutes ( art. 3).
The trainee is under contract internship.
• A percentage of funds raised outside fixed expenses, is distributed among the trainees (4). Send resume and cover letter to Csgd94120 at gmail.com